Saturday, March 15, 2014

Oregon's 3rd Parade of Cherubs and Information Fair is Coming Up Fast - Register Now!

This year's event will now be a TWO DAY EVENT - TWICE THE AWARENESS! (Info Fair on Friday, Parade on Saturday)

Please come join us for the 3rd annual CDH Awareness Parade in Portland, Oregon.

Join us as families from the Pacific Northwest march to raise Congenital Diaphragmatic Hernia Awareness as well as help further educate medical providers & the general public. Everyone is welcome to participate!

Last year we had 10 families (6 survivors & 4 angel families).
Let's double that or MORE this year!


Contacts:
Shelly Moore, Andrea Martin or Jamie Rowen
oregon@cherubs-cdh.org

Register to attend via Eventbrite:

Fundraiser Registration Page:
https://www.firstgiving.com/team/240563

Shirts are $20.00 each and are on sale through March 20th ONLY at:
http://www.tfund.com/cdhawareness2014-OR
 
Sponsorship Registration via Eventbrite:

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JOIN US FRIDAY APRIL 18, 2014 FOR THE INFORMATION FAIR
FROM 9:30 am - 3:00 pm!


Where:
Legacy Emanuel Medical
2801 N. Gantenbein
Portland OR 97227
Rooms 1075 & 1077 - (Just past the Cafeteria in the main hospital)

The CDH Information Fair will be for both medical professionals and the general public to learn more about CDH & pick up resource material. Included will be copies of summaries about the latest research studies, news from around the world, what is CDH and how is it treated, emerging issues seen as more survivors are aging and studies and case histories on Late Presentation CDH (LP-CDH), a form of CDH that is likely very underdiagnosed and very much in need of more awareness!

** We could use some help manning the tables so
if you are interested in volunteering, let us know! **

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JOIN US SATURDAY APRIL 19, 2014 FOR THE BIG PARADE
FROM 11:00 am to 3:00 pm!!


When:
Meet & greet from 11:00 am to about 1:00 pm
Parade from approximately 1:00 pm - 2:00 pm
Refreshments & family mingle from about 2:00 pm - 3:00 pm

Where:
Legacy Emanuel Medical
2801 N. Gantenbein Ave.
Portland, OR 97227
Lorenzen Conference Center - Rooms 1700 & 1702
(On the south side of the hospital main entrance)

What:
We will march to raise awareness. Along the parade route we may ask some to carry "Save the Cherubs" posters to help raise CDH Awareness. If you have posters of angel cherubs or pictures of your survivor as a baby feel free to bring them along.

Who Can Participate:
Anyone who wants to raise CDH Awareness.

Please register with us to participate!

What to Wear:
Event t-shirts are for sale. ** Shirts must be ordered by March 20th! **
If you are not able to purchase a shirt, light colored clothes in CDH ribbon colors are suggested (baby blue, baby pink, yellow or white).
Be sure & dress for the weather!!

What Not to Wear:
Anything trademarked or copy written materials or phrases.
No turquoise please.

Wings:
You can borrow wings on April 19th if you make prior arrangements above or purchase your own wings. Supply of loaner wings are limited. Wings will go to CDH'ers and angel families first, then remaining siblings & friends while supplies last. Wings are also available to buy at many party supply stores.

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Please NOTE:
By participating in the parade you give CHERUBS full permission to take and use photos in our charity literature, with the media and to raise CDH Awareness in our Save the Cherubs Congenital Diaphragmatic Hernia Awareness campaign.
 

Wednesday, August 21, 2013

April 19, 2013 - Portland's 2nd "Parade of Cherubs"

Posted August 21, 2013

(Sorry the video took so long to put together, kind of had "writer's block" trying to decide on the format & layout. Hope you all enjoy it!)

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CDH families came together on April 19, 2013 in Portland, Oregon to celebrate their 2nd Annual "Parade of Cherubs" in conjunction over a dozen other events in cities across the USA, UK, Europe and Canada & online for the "International Day of Congenital Diaphragmatic Awareness"!


This year we added a CDH Information Fair and did fundraising for CDH awareness, half of which went back to Randall Children's Hospital, our local hospital that treats most of the region's CDH cases.


Here is the video compilation from the event. :-)



  Thank You to Sam Northwood (@Samdasinga)
         for permission to use his cover of
          Rascal Flatts - "I Won't Let Go". 


We are looking forward to seeing a bigger turnout in 2014!!

Learn more about CHERUBS - The Association of Congenital Diaphragmatic Hernia Research, Awareness and Support at: http://www.cherubs-cdh.org/

Wednesday, June 19, 2013

Post Parade Followup Portland's 2013 "Parade of Cherubs"

Portland's 2nd Parade of Cherubs was a great success with 6 survivor families and 4 angel families represented! 

A video compilation should be available soon, but for now feel free to enjoy these pictures from the event & some news articles that appeared before the event.

International Congenital Diaphragmatic Hernia Awareness Day
April 19, 2013 - Portland, OR
Randall Children's Hospital at Legacy Emanuel















We are so pleased with how Parade turned out!
Thank you all who supported our Cherubs and we'll see you in 2014!

CHERUBS Oregon volunteers Shelly Moore, Andrea Martin, Jamie Rowen & Alicia Gilbert

Portland Parade of Cherubs Article on Channel 12
(Air Date: 04/17/2013) 
(Article was shown on Channel 12 news, the local Fox affiliate.)

2 of 3 CHERUBS Oregon Co-Reps Jamie Rowen & Andrea Martin and Andrea's daughter, Sarah Howerton, were featured in a article about the loss of Jamie's son Jacob to CDH and Sarah's surviving CDH. They also included information about the upcoming "2013 Portland Parade of Cherubs" to be held on April 19, 2013 at Randall Children's Hospital in Portland, Oregon.

Thank you to Dr. Barry Newman for your contribution to this article! 



Channel 8 Article on "2013 Portland Parade of Cherubs"
(Air Date: 03/29/2013)
(Article was shown on the Channel 8 news, the local NBC affiliate.)

CHERUBS Oregon Co-Rep Jamie Rowen was featured on an article about the loss of her son Jacob to CDH, and the Portland "Parade of Cherubs" to be held on April 19, 2013 at Randall Children's Hospital in Portland, Oregon.

NOTE: They had one statistic wrong. CDH Strikes an average of 1,600 babies in the USA every year, of which about 800 do not survive.

CHERUBS Oregon Hospital Angel Alicia Gilbert & CHERUBS Oregon Co-Rep Shelly Moore & were also pictured talking about their son/grandson Jayden, lost to CDH in 2010.
 
Thank you to Dr. Martha Nelson for your contribution to this article!
 

 

Tuesday, April 16, 2013

April 16, 2013 - Parade Day is just THREE Days Away!!!

(Updated 04-16-2013)

Legacy Emanuel Hospital has graciously granted us permission for our 2nd Annual Parade of Cherubs on Friday, April 19th. We thank them for for their continued support and appreciate all they do for our precious CDH babies & children. 

New this year: 

* We are also having an "Information Fair" before the parade for medical professionals & the general public to learn more about CDH & pick up resource material.

* Fundraising for Research, Awareness & Support. Registration links below have options for donating to this effort. 
50% of all local sponsorships and donations will go towards CDH Research & support of CDH families at Legacy Emanuel Hospital and Health Center! The remaining 50% will go to the CHERUBS CDH charity. 

{{UPDATE: After discussion with Legacy Reps & our charity's president since there are currently no active research studies happening locally, our local donation will be earmarked for ECMO support since the ECMO equipment is VERY expensive and without it our sickest babies would likely have little chance of survival. Not all CDH'ers require ECMO, but for those that do, it can be all the difference!}}

Join us as we march to raise Congenital Diaphragmatic Hernia Awareness. Everyone is welcome to participate! Last year we had 6 families (5 survivors & 1 angel family). Let's double that or MORE this year!!!

{{Update: Our registered count is over 60!! SO EXCITING!!!}}


When - Friday, April 19, 2013


Where - Legacy Emanuel Medical Center & Randall Children’s Hospital
2801 N Gantenbein Ave
Rooms 1075 & 1077 (Just off the Lunchroom)
Portland, OR 97227 

Information Fair
11:00 am - 1:00 pm

Parade of Cherubs
1:00 pm to 3:00 pm

Basic Itinerary:
1:00 pm - 1:10 pm - Check in & Issue Wings (Feel free to come early during the Information Fair)

1:10 pm - 1:15 pm - 
Presentation to Legacy Emanuel representative of donation check & additional presentations.

1:20 pm - 2:00 pm (Approximately) Cherubs on Parade around perimeter of Legacy campus. 

2:00 pm - 2:15 pm - Balloon & bubble release in memory of Cherubs lost.

2:15 pm - 3:00 pm - Back to rooms 
1075 & 1077 for meet, greet & refreshments. 

PLEASE NOTE - By participating you give CHERUBS full permission to take and use photos in our charity literature, with the media and to raise CDH Awareness in our "Save the Cherubs" Congenital Diaphragmatic Hernia Awareness Campaign!

Also, Legacy requires if you were a patient treated at Legacy, you must sign a release with them at the time of the parade. 


Attention Media! All media outlets attending the parade are required to contact Legacy's Media Public Relations Representative, Maegan Vidal, before the parade. She can be contacted at mvidal@lhs.org.

What - We will march to raise CDH awareness.

Who Can Participate - Anyone who wants to raise CDH Awareness. Please register with us to participate! (See registration links below.)

What to Wear - Event T-shirts were avalable for pre-sale, but only shirts ordered by March 31st were guaranteed delivery in time for the event. If you are not able to purchase a shirt or it does not arrive in time, light colored clothes in CDH ribbon colors are suggested (baby blue, baby pink, yellow or white). Be sure & dress for the weather!!

What Not to Wear - Anything trademarked or copywritten materials or phrases. No turquoise please.

Wings - You can borrow wings on April 19th if you make prior arrangements or purchase your own wings at http://www.savethecherubs.org/


Wings are also available at many party supply stores. (Supply of loaner wings are limited. Wings will go to CDH'ers first, then remaining siblings & friends while supplies last.)

Contacts 
This year's organizers are CHERUBS Oregon state Co-Representatives Shelly Moore, Andrea Martin, Jamie Rowan. They can be reached at oregon@cherubs-cdh.org or leave message at 503-805-7854.



Registration Pages - Now there are 2 ways to register. Please only choose one!

** If you want to make a fundraising page in honor or in memory of your Cherub in addition to registering, please use the Firstgiving page & when it asks what team you are on, choose the PORTLAND team to link your registration to the Portland parade. **


Firstgiving 
https://www.firstgiving.com/10125/cdhawarenessday2013

** If you just want to register for the event without a fundraising page, or just want make a sponsorship donation, please use the Eventbrite page **

Eventbrite 
http://cdhawarenessday-2013portland-eorg.eventbrite.com/

Learn more about CDH and CHERUBS at http://www.cherubs-cdh.org/.

Looking forward to meeting you there!!!

Friday, March 29, 2013

Three Weeks to Parade Day!!!

We are 3 weeks to Portland's 2nd Parade of Cherubs! 
Have You Registered Yet?


Legacy Emanuel Hospital has graciously granted us permission for our 2nd Annual Parade of Cherubs on Friday, April 19th. We thank them for for their continued support and appreciate all they do for our precious CDH babies & children. 

Event T-shirts are for sale. Shirts must be ordered by March 31st in order to be received in time for the parade!! $20 for adults, $15 for children. Order via your registration check out.

50% of proceeds will go to Legacy Health for research & support of CDH families. In addition, 50% of all local sponsorships and donations will go towards CDH Research at Legacy Emanuel Hospital and Health Center! The remaining 50% will go to the CHERUBS CDH charity. 

Join us as we march to raise Congenital Diaphragmatic Hernia Awareness. Everyone is welcome to participate! Last year we had 6 families (5 survivors & 1 angel family). Let's double that or MORE this year!!!

We are also having an "Information Fair" before the parade for medical professionals & the general public to learn more about CDH & pick up resource material.

When - Friday, April 19, 2013

Information Fair
11:00 am - 1:00 pm

Parade of Cherubs
1:00 pm to 3:00 pm

Where - Legacy Emanuel Medical Center & Randall Children’s Hospital
2801 N Gantenbein Ave
Rooms 1075 & 1077 (Just off the Lunchroom)
Portland, OR 97227 

PLEASE NOTE - By participating you give CHERUBS full permission to take and use photos in our charity literature, with the media and to raise CDH Awareness in our "Save the Cherubs" Congenital Diaphragmatic Hernia Awareness Campaign!
Also, Legacy requires if you were a patient treated at Legacy, you must sign a release with them at the time of the parade. 


Attention Media! All media outlets attending the parade are required to contact Legacy's Media Public Relations Representative, Maegan Vidal, before the parade. She can be contacted at mvidal@lhs.org.

What - We will march to raise CDH awareness.

Who Can Participate - Anyone who wants to raise CDH Awareness. Please register with us to participate! (See registration links below.)

What to Wear - Event T-shirts are for sale, but only shirts ordered by March 31st are guaranteed delivery in time for the event. If you are not able to purchase a shirt or it does not arrive in time, light colored clothes in CDH ribbon colors are suggested (baby blue, baby pink, yellow or white). Be sure & dress for the weather!!

What Not to Wear - Anything trademarked or copywritten materials or phrases. No turquoise please.

Wings - You can borrow wings on April 19th if you make prior arrangements or purchase your own wings at http://www.savethecherubs.org/. Wings are also available at many party supply stores. (Supply of loaner wings are limited. Wings will go to CDH'ers first, then remaining siblings & friends while supplies last.)

Contacts
This year's organizers are CHERUBS Oregon state Co-Representatives Shelly Moore, Andrea Martin, Jamie Rowan. They can be reached at oregon@cherubs-cdh.org



Registration Pages - Now there are 2 ways to register. Please only choose one!

** If you want to make a fundraising page in honor or in memory of your Cherub in addition to registering, please use the Firstgiving page & when it asks what team you are on, choose the PORTLAND team to link your registration to the Portland parade. **


Firstgiving 
https://www.firstgiving.com/10125/cdhawarenessday2013

** If you just want to register for the event without a fundraising page, or just want make a sponsorship donation, please use the Eventbrite page **

Eventbrite 
http://cdhawarenessday-2013portland-eorg.eventbrite.com/

Learn more about CDH and CHERUBS at http://www.cherubs-cdh.org/.

Looking forward to meeting you there!!!